Amritsar, 9th January 2025 – Ishmeet Singh, just nine years old, is fighting a relentless battle against Duchenne Muscular Dystrophy (DMD), a rare and devastating genetic disorder that causes progressive muscle weakness. This condition has already begun to rob Ishmeet of his strength and mobility, and every passing day brings more uncertainty to his future. This life-saving treatment comes at an unimaginable cost of INR 27 crore. For Priya and her husband, who have already exhausted all their savings, this amount is far beyond their reach.
“Nine years ago, our lives changed forever when Ishmeet was born. I carried him for nine months, dreaming of the day I would hold him in my arms. That day made me the happiest mother on earth,” recalls Priya Kanojia, Ishmeet’s mother. “Watching our child lose his ability to move freely is a pain no parent should endure. Every day, we wake up praying for a miracle. It is overwhelming to even imagine that my son’s last day could be the end of my own life. It's unbearable to breathe knowing that my child is battling a deadly disease—one that could become fatal without timely treatment,” says Priya.
Currently, Ishmeet is on steroids and undergoing regular physiotherapy, but his condition continues to deteriorate. Doctors at AIIMS, Delhi, have recommended Elevidys Gene Therapy, a groundbreaking one-time treatment that delivers a shortened version of the dystrophin gene (micro-dystrophin) into his muscle cells. This therapy can help prevent further muscle degeneration and offer Ishmeet a better quality of life.
To contribute or for more details, visit – https://www.impactguru.com/fundraiser/help-ishmeet-fight-dmd
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